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Photo Exhibition for Butterfly Children

Photo Exhibition for Butterfly ChildrenPhoto Exhibition for Butterfly Children

A photo exhibition about children with epidermolysis bullosa, known as butterfly children, opened on Friday at Nami Gallery in Tehran.

Photographer and social worker at Iran EB Patients Association, Mohammad Barzegar, is showing 18 pictures of children with the skin disease, ISNA reported on its Persian website.

The exhibit “In the Name of Butterfly” opened in a ceremony attended by artists and athletes including popular comedian Akbar Abdi, Amir-Mehdi Zhoole and footballer Khosrow Heydari. The aim of the event is to help raise public awareness about the incurable skin condition.  

EB is a rare genetic connective tissue disorder that results in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction, which are painful. Its severity can range from mild to lethal. Complications may include esophageal narrowing, squamous cell skin cancer, and the need for amputations. There is no treatment or cure.

Children with EB are called “Butterfly Children” because their skin is as fragile as the wings of a butterfly. The condition usually shows up in infancy or early childhood. About half a million people are affected globally.

There are some 800 patients identified with EB in Iran, of which 500 are registered by the Ministry of Health.  The show will run until July 24. Nami Gallery is located at Honarmandan (Artists) Park, North Mousavi St., Taleqani Street.

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